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The caregiver's path to compassionate decision making : making choices for those
Kind, Viki
Adult Nonfiction RA645.3 .K557 2010
Kind, Viki
Adult Nonfiction RA645.3 .K557 2010
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| Contents | Page |
|---|---|
| Introduction | p. 1 |
| Chapter 1 - Starting Down the Decision Making Path | p. 7 |
| The Day My Dad Was Shot in the Dementia Unit | |
| What Should You Do First? | |
| Getting Your Loved One Professionally Evaluated | |
| Determining Capacity | |
| Core Question #1 - Does the individual have the ability to make his or her own decisions? Does he or she have decisional capacity? | |
| How Long Will This Inability to Think and Communicate Last? | |
| Core Question #2 - If the person is not able to speak for him- or herself, how long will it last? | |
| Fluctuating Capacity | |
| Learning the Tools | |
| Chapter 2 - The Decision Making Framework | p. 21 |
| Using the Right Framework to Build a Good Decision | |
| Decision Making Framework | |
| Core Question #3 - Was the individual able to speak for him- or herself in the past? | |
| Autonomy | |
| Substituted Judgment | |
| Using the Platinum Rule | |
| Questions to Use with Substituted Judgment | |
| Making the Decision | |
| Who Should Make the Decisions? | |
| Core Question #4 - Who should make the decisions when this person can't? | |
| When the Person Making the Decisions Is Getting It Wrong | |
| Chapter 3 - The Best Interest Standard | p. 41 |
| Who Will Decide? | |
| How to Use the Best Interest Standard | |
| Which Patients Will Need the Best Interest Standard? | |
| Who Is the Unbefriended or Unrepresented Patient? | |
| Do You Know Which Framework to Use? | |
| Chapter 4 - The Shared Decision Making Model | p. 49 |
| How Old Is Your Loved One Mentally? | |
| Core Question #5 - About how old is the person developmentally? What is his or her mental age? | |
| The Shared Decision Making Model | |
| Chapter 5 - The Sliding Scale for Decision Making | p. 55 |
| The Sliding Scale for Decision Making | |
| The Danger of Using This Tool Incorrectly | |
| Chapter 6 - The Assent Tool | p. 61 |
| How the Assent Tool Works | |
| Should Your Loved One Participate in the Decision Making Process, and If So, How Much? | |
| The Assent Tool | |
| Obtaining the Persons Assent or Dissent | |
| The Problem with Assent | |
| Does No Mean No? | |
| Improving Communication When Asking for Assent | |
| Be Careful When You Try This with Your Loved One | |
| Fighting for Control | |
| Babying Your Loved One | |
| When the Person's Developmental Age Is Fourteen to Seventeen Years Old | |
| Chapter 7 - How These Tools Work Together | p. 77 |
| Testing Our New Knowledge | |
| 5 Core Questions Flowchart | |
| Using the Tools in Real Life | |
| Chapter 8 - Applying Your New Skills to Real-Life Decisions | p. 89 |
| Action Questions | |
| Decision: Starting a New Medication | |
| Decision: Taking the Car Keys Away | |
| When and How to Take the Car Keys Away | |
| Decision: Moving to a Care Facility or Group Home | |
| Decision: A Life-or-Death Medical Decision | |
| Chapter 9 - When Our Hearts Get in the Way | p. 101 |
| Choosing the Least Worst Option | |
| The Promises We Cant Keep | |
| Reconnecting with Your Loved One-The Pajama Story | |
| Are You Experiencing "Care-grieving"? | |
| Caregiver Burnout-Getting the Support You Need | |
| Protecting the Caregiver | |
| Seeing It from Your Loved One's Perspective | |
| Chapter 10 - Making the Medical Decisions | p. 115 |
| Balancing the Benefits and the Risks | |
| Asking Good Medical Questions | |
| Medical Questions | |
| When the Plan Doesn't Work or Can't Work | |
| Chapter 11 - Other Questions to Consider When Making Medical Decisions | p. 127 |
| Financial Questions | |
| Religious or Spiritual Questions | |
| Cultural Questions | |
| Chapter 12 - Quality of Life and Personal Values | p. 137 |
| Medical Goals versus Quality-of-Life Goals | |
| Quality-of-Life Questions | |
| How Quality-of-Life Goals Can Affect Decisions | |
| Deciding What Makes a Person's Life Worth Living | |
| The End of Life | |
| Chapter 13 - Making the Most Difficult Decisions at the End of Life | p. 153 |
| What Does Your Loved One Deserve? | |
| Making Decisions about CPR and DNR | |
| If I Say, "No CPR," Does That Mean Everything Stops? | |
| When Your Loved One Gets CPR Against Her Will | |
| When Your Loved One Said to Do Everything, but Everything Isn't Possible | |
| What Is the Difference Between Palliative Care, Comfort Care and Hospice Care? | |
| How Do I Get My Loved One on Hospice? | |
| When the Doctor Won't Put Your Loved One on Hospice | |
| Hospice Information for Doctors | |
| Communicating with the Dying | |
| The Journey Through the Early Days of Dying | |
| The Journey Through the Final Days of Dying | |
| Did I Matter? | |
| Discrimination at the End of Life for the Mentally Disabled | |
| Chapter 14 - The Big Picture | p. 187 |
| The Day My Mom Died | |
| Author's Note | p. 191 |
| Appendix 1 - 5 Core Questions Flowchart | p. 193 |
| Appendix 2 - An Insider's Guide to Filling Out Your Advance Directive | p. 197 |
| Appendix 3 - Action Questions | p. 213 |
| Appendix 4 - "Kindness Reminders" | p. 215 |
| Glossary | p. 217 |
| Acknowledgments | p. 223 |
| References | p. 225 |
| Index | p. 227 |
| About the Author | p. 235 |
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